In the midst of Jim Edmond's alleged cheating, Meghan King Edmonds first confirmed that her son, Hart, "might have a neurological disorder." Since then The Real Housewives of Orange County mom and her husband have banded together to find out what is wrong one of their twin sons — and in a blog post this week she confirmed that the 1-year-old "has irreversible brain damage; it’s called PVL."
She then went into great detail about how she fought to get her son tested because "from the minute he was born I knew something was different with Hart. The nurses struggled to straighten his legs to measure his length. He suckled hard, shallow, and often until I bled and he spit up black."
She noted, "Well, I knew. I always knew. I just knew…"
The RHOC alum saw a number of doctors and specialists who didn't believe there was anything wrong with him despite her intuition. After she "begged for an MRI," she got one in the midst of the scandal involving her husband's alleged affair.
"Eight days after the bottom fell out of my life, I put my son through an elective MRI with anesthesia," she wrote. "I sat at a table with my husband for an hour as we waited for Hart to come out of the MRI. Tears gushed from my eyes as I blankly stared at the cars on the highway – but I wasn’t crying. My husband asked me what he could do. 'Get me a Coke.' Those tears were for a lot of things, but mostly the unknown and mostly Hart."
She then learned that her son has "minor Periventricular Leukomalacia on both sides of his brain (namely the white matter), but more so on his right. She said that this explains all of my concerns: the rigidity in his muscles, the (somewhat) delayed physical milestones, the lack of fluidity with arm and leg movements, the stiffness in joints, the weakness in his lower back, the somewhat favored use of his right side. She told me this mainly occurs in premies and since he was not a premie (he was born at 37 weeks gestation) she believes this damage somehow occurred 'a couple months before he was born.' She explained that he is at risk for being diagnosed with Cerebral Palsy and will be monitored."
She concluded the emotional blog post by noting that while "we are BLESSED" despite the diagnosis "this doesn’t mean his diagnosis isn’t a challenge… or a little bit sad, or that I don’t feel a little bit guilty. Because yes – just yes – to all of those things."
"I pray for a miracle and I grapple with how to navigate his life. Thirteen days after his diagnosis I finally put these thoughts to paper. This is a heavy challenge as a mother: where do we go from here? This is where: one foot in front of the other."
Together the couple is also parents to Hart's twin brother Hayes, 1, and big sister Aspen, 2.